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0:05
Facebook
National Scleroderma Foundation
We’re excited to announce our 2025 Scleroderma Awareness Month theme: Stories of Strength! 💙 This June, we’re shining a light on the powerful, inspiring journeys of individuals and
National Scleroderma Foundation. . We’re excited to announce our 2025 Scleroderma Awareness Month theme: Stories of Strength! 💙 This June, we’re shining a light on the powerful, inspiring journeys of individuals and families impacted by scleroderma. From courage in the face of challenges to hope that moves mountains - your stories are ...
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Top videos
0:12
Scleroderma Awareness Month is here, a time to learn more about the realities of living with this progressive, rare disease. Scleroderma can lead to challenges in day-to-day life, so small tips, tricks and hacks can make a big difference. | Boehringer Ingelheim
Facebook
Boehringer Ingelheim
161.8K views
Jun 7, 2019
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Scleroderma awareness month What do u know about Scleroderma? To know scleroderma is to make individuals with Scleroderma feel seen and understood!🤍 We hoping for a cure 🙏🙏 Please Join me create awareness by sharing this video 🤍❤️ | Violetemor Onitsha
Facebook
Violetemor Onitsha
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Jun 2, 2024
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Scleroderma Awareness Month has officially begun! We hope you will join us all month in spreading the word about scleroderma and the unique journeys of people affected by scleroderma. Let's start by talking about what scleroderma is and how it affects people around the world. #EveryJourneyMatters | National Scleroderma Foundation
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Scleroderma Awareness Month is here, a time to learn more about the realities of living with this progressive, rare disease. Scleroderma can lead to challenges in day-to-day life, so small tips, tricks and hacks can make a big difference. | Boehringer Ingelheim
161.8K views
Jun 7, 2019
Facebook
Boehringer Ingelheim
3:08
Scleroderma awareness month What do u know about Scleroderma? To know scleroderma is to make individuals with Scleroderma feel seen and understood!🤍 We hoping for a cure 🙏🙏 Please Join me create awareness by sharing this video 🤍❤️ | Violetemor Onitsha
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Facebook
Violetemor Onitsha
0:56
Scleroderma Awareness Month has officially begun! We hope you will join us all month in spreading the word about scleroderma and the unique journeys of people affected by scleroderma. Let's start by talking about what scleroderma is and how it affects people around the world. #EveryJourneyMatters | National Scleroderma Foundation
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June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness can lead to delays in treatments and diagnosis. But we won't accept that — by working together as a community, we can change the narrative and create real progress toward ultimately finding a cure for scleroderma. To kick things off this month, in this video, Andrew talks about his journey with scleroderm
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It's June and June is Scleroderma awareness month. #sclerodermaawareness #sclerodermawarrior #weneedacure #scleroderma | Violetemor Onitsha
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Jun 5, 2022
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Violetemor Onitsha
0:40
🎉 This past weekend we hit the road—spreading awareness and building community across Central Florida and Tampa Bay! 💙 Thank you to everyone who came out—these are the moments that stay with us. But we’re not done yet... Scleroderma Awareness Month isn't over! This Sunday (June 29) we’re taking over: 📍 Weston — Ride to Cure Scleroderma 🚴♂️ 📍 Fort Lauderdale — Morning coffee at Circle House Coffee ☕ 📍 Orlando — Lake Eola Fountain Light-Up & Group Photo starting at 5:00 PM💡 Register for th
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9 months ago
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Today is the first day of Scleroderma Awareness Month and I wanted to show you how this disease frustrates me day in and day out. It can be agonizing. Be kind to everyone and protect your energy. 💖#scleroderma #disabilityawareness | Scleroderma Strong
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10 months ago
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June is scleroderma Awareness Month 🎗️ and we’re coming together to shine a light 💡 on this rare autoimmune disease that affects around 19,000 people in the UK. Scleroderma can be life-threatening, and all forms of the condition can impact daily life, but with understanding and support, no one has to face it alone. This month, we’re asking for your help. One simple act can make a big difference: please share our #SayScleroderma film to spread awareness far and wide. And if you feel inspired to
29K views
10 months ago
Facebook
Scleroderma & Raynaud's UK - SRUK
1:38
June is Scleroderma Awareness Month - and we’re kicking it off with a message from She Shutes, a fearless advocate who has turned her personal journey into powerful awareness. Living with scleroderma hasn’t stopped her. It’s fueled her. And now she’s using her voice to make sure the world sees what this disease really looks like - and why it matters. 💙 We’re honored to partner with her this month to spotlight the strength, struggles, and stories that too often go unseen. Check out her content o
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National Scleroderma Foundation
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How Scleroderma affect some parts of my Body😌🤦🏻♀️ It’s Scleroderma awareness month June🤍 | Life with Violetemor
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"For me, the challenges I have experienced with having pulmonary arterial hypertension and scleroderma are not only everyday physical things that I go through, but also mental," Nola (dx 2010) says. We're highlighting Nola's powerful story as part of PAH Awareness Month—a time to increase understanding of PAH and its impact on people living with scleroderma. Last year, we partnered with Project Scleroderma to create a special video series highlighting the real experiences of people living with s
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💙 Today is World Scleroderma Day - one of the most important days of the year for our community. We’re honored to share this video from our partner, SheShutes, featuring the voices and stories of scleroderma warriors across the country. Each story is a reminder that people living with scleroderma deserve to be seen, heard, and supported. Watch. Share. Speak up. Today, we shine a spotlight on strength, resilience, and the urgent need for awareness and research. #SclerodermaAwarenessMonth #WorldS
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Perseverance: It’s a trait that describes Ian Crego, a Michigan high school student with scleroderma, and so many others with scleroderma worldwide. Learn how the Scleroderma Foundation supports the community and see how to get involved this June Awareness Month. https://bit.ly/3wPIZws | National Scleroderma Foundation
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This Scleroderma Awareness Month we want you to learn about the different types of research we fund and why it's important. Watch our short animation to find out more! Help us improve lives and become a research investor: https://bit.ly/3VwAfKD #TakeAction #SclerodermaAction #SclerodermaAwarenessMonth | Scleroderma & Raynaud's UK - SRUK
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In this video, SheShutes opens up about how scleroderma has affected her body and the symptoms she faces every day. Her courage shines a light on the reality of living with this complex disease -and reminds us why awareness and support matter so much. Watch, listen, and learn from her story. Together, we can spread understanding and support for everyone affected #SclerodermaAwarenessMonth #StoriesofStrength #SheShutes | National Scleroderma Foundation
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