As DRPLA has progressed one of the things that happens is the shakiness of the legs. They shake more or less all day and I can’t even imagine how it feels or how painful. I’m posting two videos, one with Jessica in pain and the other with Jessica happy, either way it’s heartbreaking to see and I wish she didn’t have to suffer like this. She is a strong warrior and whatever this disease throws at her I know she will fight it to the end. She truly is an inspiration❤️ | Jessica’s DRPLA Journey
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As DRPLA has progressed one of the things that happens is the sha…
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Jessica talking properly, to now being non verbal and terminally ill with DRPLA🎄🤶🌲🎅🎄🧑‍🎄🌲 #rarediseaseawareness https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwOej9tleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEexeh9yJwe1tk0YhyTIvGLcWJzVYZ6vv46_-81hADJHCr8zjiimUMqtrFP1xA_aem_LoxVGgtx2Wt1nlDjKDq62A | Jessica’s DRPLA Journey
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Jessica talking properly, to now being non verbal and terminally ill …
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Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible and if you can sign the petition it would mean the world to us❤️👠🩷👗❤️ https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwN9fQVleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeMuLRxrPNMn3FomjdedUxxwL4yhEOYBiagVvhkr7Jj-2KvZtheQHLuYFU7Dc_aem_9suOj8831z4Z-PaZqMGWjA | Jessica’s DRPLA Journey
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Please keep following and sharing Jessica’s DRPLA Journey so I ca…
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So I started Jessica’s DRPLA Journey to raise as much awareness as possible of this cruel disease and even though the last couple of days Jessica has had good days trying on dresses the reality is she is also going to have her bad days and today isn’t so good for her. This disease has taken so much away from her and now she’s struggling to swallow. This is only a 39 second clip but this has been going on for a while and it breaks our hearts to see her suffering. Please follow and share Jessica’s
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So I started Jessica’s DRPLA Journey to raise as much awarene…
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So one thing about DRPLA i hate is how unpredictable it is and that’s why we have to make the most of her good days. This evening however hasn’t been that good and the dementia part of the disease has made it’s appearance and all Jessica has done is look at the wall, so I decided to put her sensory light on which seems to be helping her. I’ve had comments saying that dementia just doesn’t come and go but Jessica has been assessed by a dementia specialist and it has been confirmed that her dement
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So one thing about DRPLA i hate is how unpredictable it is and that’s …
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DRPLA has not just taken everything physically away from Jessica, it’s also taken away her chance of having a normal life. She’s not going to be able to go out and get drunk with friends or go shopping and trying on clothes like she was able to. She has however got Willow, who in the worst time of Jessica’s life always puts a smile on her face. Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible and if you can sign and share her petition it woul
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DRPLA has not just taken everything physically away from J…
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Please sign the petition for Jessica❤️👠🩷👗❤️ #RareDiseases #drpla | Jessica’s DRPLA Journey
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Please sign the petition for Jessica❤️👠🩷👗❤️ #RareDiseases #d…
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DRPLA has taken all of Jessica’s abilities away from her and not jus…
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She loves horses so much❤️👠🩷👗❤️ https://www.change.org/p/support …
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Another symptom of DRPLA is loss of speech. This is Jessica when s…
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Thanks Leesa Marie, you can see by her smile she loves it. I know that …
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So this is Jessica in June 2024. She had lost all mobility and with no di…
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34.1K views9 months ago
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Her eyes have to be in line for her to follow the words. Like I said thoug…
12.9K views7 months ago
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We wanted to show everyone how Jessica uses her eye gaze and all …
60.4K views6 months ago
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I think this is my favourite video I’ve posted of Jessica so far. She’s co…
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